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Support Groups and Veterans
Association for Spina Bifida & Hydrocephalus (ASBAH)
In planning for our 30th Anniversary year in 1996, ASBAH took stock of how we are performing as a voluntary organisation and how we plan to meet the challenges of the next few years. The result? A set of Aims and Principles against which we can judge all our activities.
ASBAH works in partnership with people with spina bifida and/or hydrocephalus and their carers to achieve its aims as follows:
- To promote positive attitudes towards, and counter discrimination against disabled people.
- To influence legislation and policy for the benefit of people with spina bifida and/or hydrocephalus, their families and informal carers, campaigning on issues and securing services commensurate with their needs.
- To provide advisory, advocacy and other services to people with spina bifida and/or hydrocephalus and their families.
- To provide information on and improve awareness of spina bifida and hydrocephalus and to promote the primary prevention of neural tube defects.
- To consult and listen to the views of people with spina bifida and/or hydrocephalus in forming policies.
- To promote good practice and attitudes among those working with and for people with spina bifida and/or hydrocephalus.
- To work with local Associations by providing an active information service and clear national policies on significant issues.
- To promote and fund research into the causes, effects, prevalence and prevention of spina bifida and hydrocephalus, and into effective education and treatment.
Address:
Association for Spina Bifida and Hydrocephalus
42 Park Road
Peterborough
PE1 2UQ
Tel:
Fax:
E-mail:
Website:
http://www.asbah.org/
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